

We’re moments away from being thrown out of the hospital.There was a facility found by the hospital to transfer Aden but the hospital isn’t being transparent about the facility, insurance coverage, & the mandatory procedures required to transfer patients, such as tracheotomy & feeding tube. Recently, her surgeon and the pulmonologist & hospitalist highly emphasized the importance those two procedures on the patients health. However, suddenly we are pressured to get out without it simply because a facility accepted her without these two requirements. It’s not about what’s found or accepted, it’s also about what was addressed before & about the information in which the family have been given. Three days ago, we were being persuaded about the significance of tracheotomy & feeding tube. But all of a sudden, that change without apparent reason. There’s absolutely nothing about Aden’s condition that has changed since we were provided this piece of information so why all of a sudden it changes now?! The hospital claim we’re doing it for the family sake, which is to expedite her transfer but if we can’t be patient for a day or two to avoid further complication then we shouldn’t even be nominated to be her voice at all. After everything Aden & the family went through in the past 28 days in this place, the fact the hospital decided to put us through more trouble is unspeakable. We have every right to learn, inquire & obtain information about what kind of facility is she going to, who is covering the cost, and what kind of care is awaiting for her not solely via verbal promises but also in a document. We must obtain some sort of guarantee on what is expecting her in the new facility prior to our departure. Instead, we’re being told you will obtain all the information when you get there. Really?? What kind of family takes their very ill child without acquiring sufficient information on a 7-8hrs ambulance ride simply because we’ve expressed our desire to transfer her. Wanting to care for your child near family is one thing, and choosing what’s right for her is another thing whether it’s for an hour, a day or few months. In the end, Aden still is dear and precious to us regardless of her current state . I don’t wish even my worst enemy to go through this.